Well I just wanted to fill in some background of my life as Kolton's Momma. I lived in Corpus Christi when I got pregnant. Moved to east Texas at the end of my pregnancy and have been living in Nacogdoches since. I had problems during my pregnancy, and when Kolton was born he had many difficulties. The doctors did not know if he would even live. They rushed him off to a hospital in Conroe. His heart was not pumping properly, his lungs were underdeveloped and he had lots of fluid on him. He stayed on a ventilator for six days, and I got to hold my baby on Christmas day! The best present ever. At 15 days old I got to bring him home.
The first year of his life was perfect. No doctors ever told me there was anything wrong with him. At 12 months old, I finally contacted therapy services for him. He was constantly drooling, not walking, and all at the same time he was the best thing God had given me. At this point in time his "father" took a DNA test and it was determined he was his... Come on now. So he met him one time, and has not seen him since. Kolton had his first surgery at 13 months old. He had tubes put in. He started receiving OT therapy and had improvements. His second surgery was removing his adenoids at 16 months. Then his tonsils were removed a few months after that. Then at 2 years his adenoids were removed again and he started speech therapy. In March of 09 his "father" relinquished all rights to his son and we got his rights terminated in court. I ended up giving him another chance to be a father in July of 2009, however, still not trying what so ever and cut that off by October 2009. Not once did he try to see him, however, right before he was leaving to go to Iraq he decided I should spend the money to go see him with my son. I just wasn't going to put up with that crap anymore.
2 months before he turned 3 they released him from OT. However, before he turned 3 he was back in OT as his muscle tone was getting worse. In January of 10 shortly after he turned 3 he was back in surgery getting tubes put in again, supposed to remove his adenoids again, and a flenuloplasty. Unfortunately the doctor forget to remove his adenoids. Due to his sleep apnea, we had to get these removed in hopes that not only would his other issue cease but in hope that he would not have to wear a sleep apnea breathing machine (C-Pap) at night. So we were back in surgery a month later removing his adenoids.
In March 2010 we finally got into the neurologist because his new pediatrician thought that he might have mild cerebral palsy (we were told this the day before Thanksgiving). After way to many months, we finally got that answered. He did not have mild CP. However, the neurologist did some genetic testing on him, and thank the Lord, everything has came back good so far. He has a MRI scheduled in July. The neurologist still thinks his issue still stem from the genetics. However, there just isn't enough test to run at this time. She diagnosed him with severe anemia and he is on some special iron... Hopefully this will fix his restless leg syndrome and maybe alleviate some of his sleep apnea's. We are actually switching to a new doctor for his sleep apnea, and going to Texas Children's Hospital in July for that as well. His neurologist just wasn't satisfied with his pulmonologist in Tyler, as we were not either. We are waiting on a referral to see an otolaryngologist in regard to mandibular advancement. My sons pulmonologist thinks that this type of surgery would be beneficial for him. However, after reading up on what exactly that entails, I am not to thrilled about even listening to the specialist. However, only time will tell.
The past three years have been crazy with doctors and therapies for my son. It is even harder when the decisions that I have had to make were by myself. My son is the world to me and I pray everyday that I make the right decisions. Well that is the basis of my life since I became a Momma! Mixing all of that with school and work.
Well i am so praying for you and ur son. I know God is with you and him as for his father GET RID OF HIM!!!
ReplyDeleteHA HA.. Thanks hun. I definately agree about the get rid of him. Unfortunately, there is this part of me that has issues with actually doing that. Keep reading, I am sure you will continue to hear more about that!
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